NICE releases new draft guidelines

For many years, people living with ME/CFS and members of the medical community have been expressing this concerns about existing guidance for the treatment of ME/CFS, in particular, the use of Graded Exercise Therapy (GET) and Cognitive Behaviour Therapy (CBT) as the main treatments. Charities and support organisations have been Read more…

Post Covid-19 Research must include ME/CFS

People with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) have been concerned since the start of the coronavirus pandemic that a subset of COVID-19 patients will go on to develop ME/CFS. Unfortunately, we are already hearing from many COVID-19 survivors around the world that they are continuing to experience debilitating symptoms for many months, Read more…

New study into ME/CFS launched

Funding for the world’s largest genetic study into myalgic encephalomyelitis (ME), led by a partnership of patients and scientists, has been announced today. Despite its high cost to patients, the economy, the NHS and society, very little is known about the causes of ME, also diagnosed as chronic fatigue syndrome Read more…