Every penny we receive helps to provide much needed peer led support groups and other resources used by our members and visitors. You can help increase the donations we receive by shopping at Amazon Smile. By using the Smile website when you shop with Amazon, they will make a donation Read more…
After a long review process involving clinical specialists, round table discussions including views from patients with ME/CFS and additional input from Dr Charles Shepherd of the ME Association, NICE finally released a full review of the management and treatment of the condition. For many years people suffering the chronic illness Read more…
Current UK Government policy does not make way for priority vaccination for people with ME/CFS, but we know that contracting the virus could have serious impacts for sufferers. There is open debate about possible side effects of the vaccination for people with ME/CFS. This is also true of the flu Read more…
For many years, people living with ME/CFS and members of the medical community have been expressing this concerns about existing guidance for the treatment of ME/CFS, in particular, the use of Graded Exercise Therapy (GET) and Cognitive Behaviour Therapy (CBT) as the main treatments. Charities and support organisations have been Read more…
People with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) have been concerned since the start of the coronavirus pandemic that a subset of COVID-19 patients will go on to develop ME/CFS. Unfortunately, we are already hearing from many COVID-19 survivors around the world that they are continuing to experience debilitating symptoms for many months, Read more…
Funding for the world’s largest genetic study into myalgic encephalomyelitis (ME), led by a partnership of patients and scientists, has been announced today. Despite its high cost to patients, the economy, the NHS and society, very little is known about the causes of ME, also diagnosed as chronic fatigue syndrome Read more…