The Purple Book receives an update

The ME Association has released its 10th edition of the Purple Book, a must have guide for anyone who has been affected by, or has an interest in M.E/CFS. This 147 page book has undergone a 6000 word revision with updated references. Written by the ME Association’s medical advisor, Dr. Charles Shepherd, this book will provide medical professionals and those with a keen interest in the illness, a detailed explanation of the clinical issues of Read more…

New chronic fatigue syndrome test is 84 percent accurate

Myalgic encephalomyelitis/chronic fatigue syndrome does not currently have a diagnostic test. But this may soon change, as researchers have developed a test that can predict it with an unprecedented level of accuracy. Currently, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is estimated to affect more than 1 million people in the United States, and up to 24 million people worldwide. This often debilitating condition is characterized by feelings of extreme exhaustion, muscle and joint pain, and insomnia, Read more…

The microbiome hypothesis: Dr Ian Lipkin’s collaborative, part 1

A gut reaction is the problem in ME/CFS – that’s the main idea being pursued by Dr Ian W. Lipkin of the Center for Infection and Immunity at Columbia University. He believes that the body’s response to changes in the gut could be what’s driving ME/CFS for at least some patients. Lipkin’s collaborative group, the Center for Solutions for ME/CFS, will test this theory as part of a $9.6 million, five-year research programme, which Lipkin Read more…

Forward-ME Group Letter – Science Media Group

Forward-ME Group Letter Forward-ME Group Chair, The Countess of Mar, has written on behalf of the members of the Group to the Chief Executive of the Science Media Centre asking for the SMC “to retract and replace your factsheet on CFS/ME, published on 21 March 2018”. The letter continues that the factsheet, entitled “CFS/ME – The illness and the controversy” “……. includes numerous inaccuracies and distortions; it denigrates patients and some doctors; it fails to Read more…

The ME Association and Gary Burgess are pleased to announce the launch of The ME Show.

The ME Association has teamed-up with Gary Burgess to produce a series of podcasts they have called ‘The ME Show’. Gary will be narrating each episode and interviewing invited guests. The podcasts will seek to raise awareness about M.E., provide information and research news, and will include notable guests and experts from within, and outside of, the M.E. world. The ME Show will go live at the very start of ME Awareness Week, on Monday Read more…

Public consultation on PIP results in DWP pledge to record all assessments | 23 April 2018

ITV News, 23 April, 2018 Ministers urged to go further in disability benefits reform after major review Frank Field, chairman of the Work and Pensions select committee. MPs and campaigners have urged the Government to go further in reforming benefits for disabled people after ministers published their response to a major review. The Department for Work and Pensions has pledged to make recording assessments for Personal Independence Payment (PIP) a standard part of the process. Read more…